Hunter has been doing wonderfully at St. Edward School. The first week or so was rough, he would cry/whine about going and he didn't like going to after school care. Which in our family is a must because I can't be there for 2:50 to pick him up every day. But now he has really gotten into the swing of things and actually likes going to after school care. When people ask him what his teacher's name is, he always includes the ASC teacher, Mrs. Jennifer. He has really gotten the days of the week concept down pat and every morning asks what day it is and where we are going that day. He knows now that we go to school Monday through Friday and stay home on Saturdays and Sundays. He also receives speech therapist twice a week at St. Edward with a lady who has sent me some of the nicest notes about his progress.
Honestly, this woman has no idea how much these emails ease my worries. I always pray that Hunter does great things in the future, but to get reassurance that someone else believes that will happen, and especially from a professional, makes all the difference in the world!!
I also wanted to mention that on October 25th I will be participating as a member of the family panel at an Usher Syndrome Symposium in Baton Rouge at the Pennington Biomedical Research Center. We are focusing on getting families from Louisiana together to discuss all aspects of Usher Syndrome. Dr. Jennifer Lentz who spoke at our fundraiser last September in Broussard is putting this on along with the LSU Health Sciences Center out of New Orleans. If you know anyone from Louisiana and surrounding areas who would be interested, please email email@example.com.
My post will be a little short, but I will add a few pictures. Pictures tell more of a story than my updates anyway.